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10 Ways to Make Your Illness Support Group Uplifting

by Lisa Copen

If you live with chronic pain or an illness, odds are that you have attended a support group at least once since you were diagnosed. Did it feel something like this?

You felt awful the entire day but you decided to get in the car and go to the support group anyway. You thought it would be good for you. It took forever to find the building at the hospital and then you ended up parking what seemed like a mile from the suite number. You found a chair that smelled like old sweat and smoke and hoped somehow you would find some encouragement. But an hour later you’re ready to make dash for the door. Everyone seems to be so depressed! And too many people want to either sell you a juicer that is sure to cure your problems, or tell you about every surgery they’ve had since 1977.

Aren’t support groups supposed to be valuable in learning how to cope with illness and encourage one another?

Yes, they are! Studies done on support groups by David Spiegel, MD, have found that support groups do improve the quality of life for their attendees. Recently studies have concluded, however, that the lifespan of a patient with cancer may not increase because of a support group environment (CANCER, Sept 2007). However, we cannot deny the fact that the validation of one’s feelings about their illness definitely makes a difference in how they cope with chronic illness.

You may have attended a support group in the past or perhaps you are looking for leadership ideas for one you are starting. Regardless of how long you have (or have not) participated in one, it’s likely that you’ve seen how quickly the groups can move from being an honest and sharing place to a session of complaints and even quarreling. Would you like some fresh icebreaker games for small groups to perk people up?

Here are 10 tips to help you make your chronic illness support group include some laughter as well as just the discussion of challenges. And these ideas will work for any groups, from a Dementia support groups in Dallas to an Ebsteins Anomaly support group. And these ideas are perfect to have when you are creating a proposal for starting up a support group.

1. Make faces on sticks. It may sound silly, but sometimes getting back to basics works best. Cut out smiley faces and sad faces and glue them on each side of a stick or plastic knife. As people take turns sharing about their week, make sure they can show both sides of the faces. For example, Kim may hold up the sad face while she says “getting ready for surgery and all the therapy afterwards has been stressful.” (Then she can flip the face over to a smiley face) “But I’ve really appreciated how many family members has volunteered to help with childcare.”

2. 2. Rethink your definition of what counts as indoor games for small groups. For example, ask everyone to bring an item to contribute to a JOY box and then pass it around during the meeting and let people choose everything to take home. The range of objects can be anything a silicone bracelet, a favorite poem, a funny DVD, an encouraging note or even a joke book. Have everyone return the item during the next meeting and occasionally have people bring fresh items.

3. Be goofy together with ice breakers for small groups. Make up a fun, corny theme song to start each meeting, or pick a tune everyone knows and make up new lyrics. Check out comedian Anita Renfroe’s website for some terrific examples that will leave you in stitches.

4. Bring corny props that you use during meetings. Don’t make anyone feel pressured to use them (some people may not come again if you make them put on a clown nose.) But have them available and encourage silliness before getting down to the nitty gritty of why you’re really there. Oriental Trading Supply has thousands of fun items to use at a reasonable cost.

5. Don’t let the group turn into a venting session for one member who insists dominating the conversation. There is often someone who insists on sharing details about diagnosis, treatments, complaints, family troubles etc. If you have someone who fits this description, implement a policy to set a timer. Make it fun by telling people they have 60 seconds to get anything off their chest and they can talk as fast as they want. Does someone want to share about a new alternative treatment? Give him/her a limited time like 1 -2 minutes and then invite people to ask for more details after the meeting.

6. Ask everyone to bring an encouraging item to include in a gift basket for someone in need who is either unable to attend the group or not even a member. Put your heads together about what kinds of items to include. You can find over five-hundred simple ideas in the book “Beyond Casseroles.” Remember personal notes mean a lot, even from people you don’t know, so ask people to write a sentence or two to include with the item.

7. Plan a fun evening for the group. If everyone wants a nice sit down restaurant, that’s fine, but you have more fun at your local kid’s pizza playing pinball. It can definitely be a successful icebreaker for small groups. A different environment may encourage some people to be vulnerable who have remained quiet previously.

8. Hand out articles and other resources that encourage people to thrive despite their illness. You can find fun items through the National Invisible Chronic Illness Awareness Week website like “My illness is invisible but my hope shines through.”

9. When you schedule guest speakers, remind them that you want to provide the most positive outlook as possible, while still being practical. Invite them to pass out props, encouraging articles. Listen to your speakers before scheduling them. Some illness speakers are quite depressing.

10. Focus on things that your group can actually do that will change things, since they may feel so unable to control their illness. If you can’t physically participate in the local walk for charity, could you work at a table handing out snacks or doing registration? Find events your group can participate in to feel like they are doing more than just complaining about their predicament. Take advantage of the energy that teens with chronic illness often have to motivate support groups to get involved in outside projects.

Support groups can provide some of the most influential relationships that can help one live successfully with chronic illness. The environment of the group, however, can make or break its usefulness. With these few simple tips, your group can be a refuge and a place of true relaxation, creating an special group for people to create friendships that could just last as long as the illness, perhaps indefinitely.

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